Data Portability in Developmental Services: A Knowledge Sharing Workshop

March 30, 2016, The Fields Institute

Location: Fields Institute, Room 230

Overview

Robust, convenient and secure methods for storing and sharing information are increasingly important in complex organizations. The Data Portability Workshop is a day-long symposium on how to make information transfer easier within the Developmental Services sector. Topics will touch on the challenges, strategies and best practices for how data is shared both inside and outside Developmental Services organizations. The workshop will include interaction between academic community, Ministry of Community and Social Services, industry and agencies within the sector. From expert talks in the morning to several breakout sessions in the afternoon, the day will have both educational and interactive components. This forum will provide valuable insight and generate new ideas on how to design and implement a protocol for information transfer. The workshop is organized as a collaborative effort between Christian Horizons and the Fields Institute.

The workshop will include the following topics for breakout sessions:
a) What your organization can do to prepare for making data more portable
b) Next steps in the project, defining more datasets, pilot programs, and project organization
c) Discussion on the infrastructure and challenges that currently exist with data portability

Video Feed Links:

Darts Software (MyDirectPlan) and Sharevision

Schedule

Wednesday, March 30th, 2016
09:00 to 09:20	Introduction John van Dijk, Christian Horizons
09:20 to 10:35	Lessons learned from the implementation of data portability in other industries Rick Strooboscher, Karos Health
10:50 to 11:15	Demonstration of developed data transfer Darts Software (MyDirectPlan) and Sharevision
11:15 to 12:30	The ABCs of XML Frank Wm. Tompa, University of Waterloo
13:30 to 14:45	Security and Privacy considerations that agencies should be aware of in data sharing Chantal Bernier, Dentons LLP
15:15 to 16:15	Preparing your organization for data transfer Casey Pruden, CL Toronto, David Renfrew, CL Toronto, Shawn Cooke, CL Toronto

Schedule

Session 1: Lessons learned from the implementation of data portability in other industries
Speaker: Rick Stroobosscher, President of Karos Health

Rick is the President and CEO. He guides the talented team he has assembled. Prior to founding Karos Health, Rick served as the CTO of Medicalis Corporation between 2002 and 2004 in Waterloo, Ontario, where he led engineering and architected integration and clinical decision support solutions for large healthcare enterprises. From 1993 to 2002, Rick worked at Mitra Imaging in Waterloo. As CTO of Medicalis and Mitra, Rick developed innovative and standards-based technologies to enhance the integration of disparate clinical systems and the communication of medical data across the healthcare enterprise. Rick was one of the primary industry architects developing solutions for archiving and distribution of image data, as well as integration of image and information systems. Rick also launched and managed Mitra's European headquarters. Rick is a graduate of the University of Waterloo, where he earned his Master of Mathematics degree in Computer Science. Prior to joining Mitra, Rick taught at the University of Waterloo and was a member of the Programming Languages Group, as well as a research assistant in the Computer Graphics Lab.

Session 2: An overview of the structure being used for transferring data (XML)
Speaker: Frank Wm. Tompa, Professor Emeritus at University of Waterloo and Co-founder of Open Text

Professor Frank Tompa has served the University of Waterloo since 1974. His research interests include the design of text management systems suitable for maintaining large reference texts and large, heterogeneous text collections. He has co-authored the book Communicating With XML in addition to papers in the areas of database dependency theory, storage structure selection, query processing, materialized view maintenance, text matching, XML processing, information retrieval, structured text conversion, database integration, data retention and security, and text classification. Prof. Tompa served as co-director of the University of Waterloo's Centre for the New OED and Text Research, through which he worked closely with the Oxford University Press to help computerize the OED. He co-founded Open Text Corporation (now headquartered on Frank Tompa Drive); was named a Fellow of the ACM; received Canada's Queen Elizabeth II Diamond Jubilee Medal; was granted a Doctor of Laws, honoris causa, by Dalhousie University; and won a Canadian Association of Computer Science Lifetime Achievement Award.

Session 3: Security and Privacy considerations that agencies should be aware of in data transfer
Speaker: Chantal Bernier - Counsel, Global Privacy and Cybersecurity Group, Dentons LLP

Chantal Bernier joined the Privacy and Cybersecurity practice of Dentons Canada LLP in 2014. She came to Dentons after nearly 6 years leading the Office of the Privacy Commissioner of Canada (OPC) as Interim Privacy Commissioner and as Assistant Commissioner. She oversaw the operations of the OPC, including national and international privacy investigations in the public and private sectors, privacy audits, privacy impact assessment reviews as well as technological analysis, privacy policy development and research. Prior to leading the OPC, Chantal worked at senior levels of the Government of Canada, including as Assistant Deputy Minister responsible for Socio-Economic Development at Aboriginal and Northern Affairs Canada, as Assistant Deputy Minister responsible for Community Safety and Partnerships at Public Safety Canada, and as Director of Operations for the Machinery of Government Secretariat of the Privy Council Office. Chantal also negotiated international conventions for Canada as part of the International and Constitutional Law Section of the Department of Justice. Chantal’s insight as a former privacy regulator, as well as her experience as a senior executive, uniquely positions her to understand corporate management challenges and find solutions to both serve corporate interests and comply with the law.

Breakout Sessions for further discussion and feedback:
        a) What your organization can do to prepare for making data more portable
        b) Next steps in the project- defining more datasets, pilot programs, and project organization
        c) Discussion on the infrastructure and challenges that currently exist with data portability